Day 2: A Day of Testing!

Well, where to begin? We were woke up of course multiple times by staff (no way?! Yeah, way! In this day of modern medicine they still don't let you sleep!Arghh!!!!)and by 8am this morning they were in poking and prodding. I have to forgive them (naturally) because they continue to mention just how "cute she is" and "oh my look at her beautiful eyelashes how they flip up"(yeah that's my girl; it's all good now but not when she is 16, ok?) Sorry I digress!

The first test done was the sweat test for Cystic Fibrosis, which we have no results back as of tonight, but anticipate info tomorrow. Then the One Poke Wonder from lab drew her blood and her nurse Amy was successful in getting her Quick Cath urine. We then were able to visit w/ the pediatrician who informed us that we were going to be consulted by a Dietician, Speech Therapist and ENT. We no sooner finished w/ the PED's people and were whisked away to the bowels (basement) of the hospital for her chest xray.

After a couple of hrs of R&R we were then visited by dietary to FINALLY get her food right. Ask my wife about the struggles that was, wow. All is good now. Blood work and urine were unremarkable but the most telling of the the testing was the ENT consult where he place a scope into her nostrils and he even let me see the cool stuff in my kids' nose and throat (I know it's sick and wrong, but I'm an RN, we kinda live for this kinda stuff!)

He was able to confirm for us that her Adenoids are HUGE and she is not moving much air. The right nare is more occluded (obstructed) than the left. I kid you not, the air that can pass through on the right practically has to do it through an opening the size of this hyphen - WOW! Naturally that places more stress on her heart. Her vocal chords are inflamed and red because of the acid reflux that makes it to that level. No official plan has been made w/ regards to what to do, but my money is on surgery to remove adenoids and place tubes in her ears. Her hearing is the equivalent of you or I placing ear plugs in, so right now she is learning from her environment primarily by visual experience.

I want to especially thank Angie from Metrohealth for a very tasty meal and her daughter for sharing those most yummy cookies!!! Thanks Mom and Dad for your your blessings too! YUMO! Michelle and I really appreciate all of your prayers and encouragements through the responses via email and especially the postings on the Blog site. Keep it up!

Stay tuned for there will be more to come tomorrow...


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